The 5X1000 at CiaoLapo: let’s build resilience together after a perinatal bereavement
The CiaoLapo 5X1000 campaign: #laconoscenzacheprotegge
Together we improve knowledge, competence and care in perinatal bereavement.
Since 2006, we have offered support to anyone, for whatever reason, who is affected by the loss of a baby during pregnancy or after birth.
We welcome parents, family members, friends and health professionals on our telematic channels and also vis a vis, in the 16 regions where we are present with our trained volunteers.
We believe that being on the side of people affected by perinatal bereavement means promoting their resilience with due time and in the right ways.
We know how important it is to promote the physiological processing of bereavement in order to avoid the pitfalls of complicated bereavement and to prevent perinatal depression and other mental disorders both after the loss and in subsequent pregnancies.
We know that training the operators who work in our birth centers, in neonatal intensive care and counseling centers and raising awareness among young undergraduates during the course of studies or during the drafting of the thesis has a positive impact on the bereavement of parents.
We know that promoting research in this area has a profound utility and promotes both directly and indirectly resilience.
We know that providing bereaved parents and family members with a space (virtual or face-to-face) for discussion, exchange and reflection is a powerful activator of resilience.
Resilience is being able to face a new parenting ( gut, heart or symbolic ) with trust, hope and love.
Resilience is feeling part of an entire community , feeling that you have a role in society or in the world, despite the deep pain and grief that has hit us.
Resilience is taking all the time necessary and being able to take advantage of all the useful tools to process a perinatal bereavement without succumbing.
Resilience is having tools available (books, articles, films, artistic resources, photographic reports) to better “frame” one’s path, one’s feelings and one’s existential situation.
Resilience is having health workers and educated professionals available to offer professional, human and relational support.
Resilience is having a community and a society prepared for the issues of bereavement and perinatal bereavement.
For 14 years CiaoLapo has been dealing with resilience and the promotion of perinatal health, understood as the physical, mental and social well-being of mothers, couples and the unborn.
With your 5X1000 you can help CiaoLapo to help the 130,000 couples who face peri-natal loss every year.
How do we use your 5X1000?
Our keywords are culture, education, training, resilience.
- We help couples to orient themselves in their mourning journey through free information material, online groups and advice via email.
- We provide institutions and operators with educational material to learn support for families and to perfect their professionalism.
- We stimulate institutions to encourage the adoption of correct diagnostic and therapeutic protocols in all Italian regions.
- We encourage the knowledge and adoption of all applicable laws regarding the rights of people affected by perinatal bereavement.
The reports of the expenses incurred with the five per thousand funds, as sent annually to the Revenue Agency, are available in the ‘ Documents ‘ section of the site, together with the budgets of recent years and detailed reports of the activities supported.
What is the 5X1000?
Donating the 5X1000 is simple, involves no additional cost for the taxpayer and can make a difference for many people!
In the form of your tax return there is the section 5×1000.
Simply enter the CiaoLapo Tax Code : 92070250482
With this simple gesture, with your 5×1000 you can support our statutory projects year after year and be part of the cultural change so important for the health and well-being of families affected by perinatal bereavement.
12 reasons (one a month) to support us
CiaoLapo has been registered in the single register of non-profit organizations since 2007, and our activities have grown significantly over the years also through the five per thousand (which together with liberal donations, is the only economic income thanks to which the association develops its activities ).
This brief report of our activities made possible thanks to your 5×1000 is a way to thank all our members who believe in the power of change and of doing good well.
Thanks to our numerous supporters it has been possible to carry out important awareness-raising projects in many cities in 16 different regions, through the contribution of our 40 local volunteers who have spent their time and personal resources to become ambassadors of the CiaoLapo projects.
Thanks to an intense team work in fourteen years we have built day after day a bridge between thousands of bereaved parents, scattered throughout Italy and around the world.
This bridge later became a small network to offer support to many parents who did not have access to self-help and psychoeducation tools : thanks to the constant work on the web and the parallel research work that we began to develop with parents and operators, we were able to get in touch and establish very important relationships for bereaved parents and operators interested.
The tools of CiaoLapo are: the constant study of different and complementary disciplines (medicine, psychology, psychotherapy, anthropology, sociology), the education of operators through courses, lecture notes, research, scientific articles, support for parents through words , gestures , shared time , both in our moderated forum and in our self-help groups.
Our thanks go to all those who have contributed to making CiaoLapo what it is, a welcoming tool, knowledge and resilience for thousands of people every year.
Following, the numerous activities in support of perinatal health that CiaoLapo was able to carry out thanks to the 5×1000.
The twelve key points of our activities
1 The physical headquarters of CiaoLapo
At the end of 2013 the CiaoLapo space, which had been virtual for many years, has finally become real: since December 2013 we have a multipurpose venue , the Casa di CiaoLapo , where our statutory projects continue from training to support for the promotion of physical and psychological well-being. and social issues of families.
Numerous periodic meetings open to parents on the themes of healing and mourning, training meetings for operators, cultural events such as photographic exhibitions, book presentations, workshops on emotions were organized at the headquarters.
2 Self-help
Our self-help groups for bereaved parents are active in numerous Italian cities: Turin, Bergamo, Como, Milan, Genoa, Florence, Modena, Bologna, Vicenza, Treviso, Rome, Naples, Cosenza.
We are working to open new self-help groups in other cities, with the aim of reaching all regions.
3 The training
CiaoLapo’s permanent goal is the training of operators: for years we have been holding training courses to become facilitators of AMA groups .
Mourners must be protected from incompetence , which is why all our volunteer facilitators receive basic training and regular online and face-to-face supervision.
In 2014 and 2015 we have experienced two Modular courses in the psychology of residential perinatal bereavement: they were held by Claudia Ravaldi between March and December in the Prato office, with a good group of operators from various Italian cities and with the help of the psychotherapist Cecilia Ginanni, a collaborator of CiaoLapo. The two courses had the dual purpose of training operators, self-financing the association and identifying competent operators with whom to start collaborative activities.
In 2016 we concluded the “Correspondence” project on correspondence support, a training course that CiaoLapo offered to all its volunteers, promoted by the Maria Bianchi Association and carried out with Nicola Ferrari, in order to perfect the methods of welcoming parents. mourning through writing.
We have also consolidated training on the subject of infertility, offering at the end a free training day reserved for operators on October 15th, on the occasion of BabyLoss Awareness Day.
Online intervision courses continued for all volunteers involved in facilitating self-help groups.
In 2017 and 2018 we launched a Distance Training course aimed at all operators in the maternal and child area, so as to bring basic training to realities still far from CiaoLapo, allowing local operators to have an initial discussion on the subject.
In 2019 and 2020 we promoted the free itinerant training project for operators “In viaggio con Levante” , which involved twenty-five hospitals, counseling centers, libraries and associations and contributed to the basic training of about 400 operators.
In 2020 this project was converted into an online distance training project, so as to allow operators to access basic training despite the pandemic and the resulting limitations.
For the same reason , all the CiaoLapo texts and teaching materials have been made available free of charge in pdf format on the association’s website.
4 The memory box project
In 2014 we packaged and distributed over 100 memory boxes free of charge in the hospitals that joined our project.
In 2015 we brought 40 memory boxes to 40 new birth points: around 190 memory boxes were requested in that year and a thousand leaflets explaining the project were distributed.
350 memory boxes were delivered in 2016 . The association held 15 training sessions on the use and rationale of memory boxes in various Italian birth centers and in some TINs, joined the Hope for Children project by purchasing 100 hope bears to be included in our memory boxes and began collaborating with some birth points for the creation of smaller memory boxes, designed specifically for the second trimester of pregnancy.
Over 1300 memory boxes were delivered in 2017, 2018 and 2019 .
In 2020 the project will extend to the care of the losses that occur in the first half of pregnancy with the Bebe-farfalle project.
The permanent objective is to sensitize the birth points and neonatal intensive therapies on the correct use of the memory box as a tool for the first grief processing, educating the operators to use the tool in the various gestational periods and to fill in the memory booklet.
5 The book of memories
Since 2014 we have distributed around 10,000 free memory booklets , which are correctly used in many hospitals: many operators use them routinely in cases of perinatal loss and numerous positive feedbacks are coming from parents who receive the booklets completed in the hospital.
Permanent objective: to provide the booklets to all new birth points who are requesting them. Distribute the new booklet for the collection of memories in birth points that do not know the instrument and its rationale.
6 The information leaflets
Since 2014 we have printed and distributed 5000 copies each of our information flyers.
In 2018 , the leaflets already written were updated and revised and a new leaflet was created on the puerperium and on milk production after perinatal loss.
In 2019 , two new leaflets were added: the leaflet on mourning in fathers and the leaflet on mourning in grandparents.
In 2020 we plan to produce three new flyers on the subject of infertility, miscarriage and laws on maternity, work and loss.
7 The self-help book
CiaoLapo offers free of charge to bereaved parents and interested operators a self-help and psychoeducation text on perinatal bereavement, Piccoli Principi.
The first edition of ” Little Principles – Losing a baby in pregnancy or after birth ” dates back to 2007; 5000 copies of that edition were printed and distributed and today it can be downloaded from the CiaoLapo website and is present in the notes on the Facebook page.
Since December 2014 , the revised and updated book is available again in a third edition enriched with appendices and contributions .
In 2015 we distributed 2,000 copies of the book for free and in 2016 we printed and distributed another 4,000 to operators, students and parents.
In 2017 we printed and distributed 4000 copies to cover requests from hospitals and clinics.
In 2018 , the guide Assisting Perinatal Death: The Role of Hospital Staff in Supporting Grieving Parents and Family Members was released, available on Amazon kindle and in print.
In 2020 we finished the update of Piccoli Principi, which will be distributed starting in June. We are working on a version of Little Principles related to loss in the first half of pregnancy: this publication is part of the Bebe project, and is scheduled for October 2020.
All our first aid texts are available in pdf format in the documents area of the site.
We have published our therapeutic tale ” In the wake of a shooting star ” in English and Spanish to meet the numerous requests from colleagues and perinatal workers regarding the work that can be done through this text with bereaved families who have other young children. .
8 Free intervention by operators
Intervision takes place online once a month.
9 Films and documentaries
The promotion of awareness on perinatal bereavement through the different narrative languages available has always been present in the statute of our association.
Leaving the bay of the king by Claudia Cipriani is the first documentary we supported in 2011 .
In 2014 we then produced and distributed the docufilm ” Lamoreverticale “, the work of director Teresa Paoli . Lamoreverticale is the first film in Italy to have perinatal mourning as its main theme and has participated in many festivals with considerable success.
In 2016 we financed the documentary Gli equilibristi, also co-financed by the Piedmont region, of which an extract used for training is currently available.
In 2017 we financed and co-produced a short film, KOI , which addresses the issue of severe prematurity from the point of view of fathers.
In 2018 we contributed to the making of the documentary ” Don’t talk about the bab y” by Ann Zamudio.
In 2019 we contributed to the realization of the short ” Held for a Moment ” by LunaMoon Production.
In 2020 we contributed to the realization of a theatrical show “Another like me” produced by the Banda Sciapò, on the theme of perinatal loss from the point of view of the father; as soon as it is possible to return to the theater, after the pandemic, we will take him to the cities where we have our support groups.
10 Degree theses and research projects
Since 2008 we have followed almost 100 degree theses, in Obstetrics, Nursing, Psychology and Medicine, in various Italian universities .
We have participated in two international research projects, the results of which have been published in the prestigious THE LANCET journal (2011 and 2016) and in the BJOG.
In 2018 we published the results of the Lucina Survey, and the first results of the survey on human rights in pregnancy and childbirth (Lovethem).
In 2020 we launched a new international research project that will extend to 2021.
11 BabyLoss Awareness Day
Since 2007 we have been promoting the awareness day on perinatal loss in Italy, with a growing interest in more and more cities. In 2014 the babyloss was organized in 35 Italian cities, united by the same program, and the same goal: to be witnesses not only to a painful past, but also to a cultural change that can make a difference in the mourning of parents and families. The goal for 2015 was to arrive in at least 50 Italian cities.
Since 2016, year after year, we have reached around 70 cities.
Since 2018 we have started to promote the symbolic lighting of the monuments of various Italian municipalities in pink and blue, to raise public awareness. The accession of the municipalities was very well attended.
12 Permanent awareness project “Do you know CiaoLapo?”
Since 2008 we have been distributing our information kits to hospitals and counseling centers , so that more and more operators know us and reflect on the type of support we offer and promote for parents and bereaved families. The kits are full of information, leaflets, bibliographic sources, support tools. Between 2014 and 2019 we prepared and distributed 1200 information kits that were brought to Italian birth centers and counseling centers, verifying compliance with good practices in the previously contacted birth centers.
We have reached about 300 of the Italian birth centers and started a collaboration with 150 of them.
The goal for the next three years is to bring the basis of perinatal bereavement care to at least half of the birth centers, promoting the adoption of good first aid practices.
All this is possible through the commitment of all of us.
Thanks for your support
Claudia Ravaldi, Alfredo Vannacci
